Kidney Disease Studies

good kidney disease studies available at 
https://pubmed.ncbi.nlm.nih.gov/32539044/

My Kidney Disease Journey

For over 10 yrs, my GP had known about my elevated creatinine levels and not told me a thing.

It was a locum who let it slip, during an appointment about my increased night time urination. 

I was getting up practically every 2hrs, needing to pee.

I insisted on a print out of every blood & urine test over that 10yr period, and ever since.

I was given NO dietary advice from my GP or from the kidney specialist that I saw last Sept.

They practically told to me to just carry on and not worry my silly little head about things, since CKD was not really a problem, unless my creatinine levels went beyond 140.

They gave me no advice as to how I was to ensure that the levels would no go above 140.

However I had learned to mistrust my GP and the NHS. 

I did my own research, online, about how to lower my creatinine scores.

I got a blood test every 3mths, to ensure that I was on the right track.

All was well, until this covid pandemic. 

I received a txt msg from the NHS, followed by a letter, telling me that I was clinically vulnerable to covid 19 an had to self-isolate.

This was news to me, given that I’d been told that CKD meant nothing to worry about.

Back to online research, where I found that CKD stage 3 meant impaired kidney function, by over 30%.

Neither my GP or the kidney specialist had ever mentioned this.

Operation Shielding meant living on food parcels. 

After 3wks on these foods, I was getting shin-bone cramps, itchy fingers & toes.

I did more online research and discovered a renal diet and information about potassium and phosphorus 

- neither of which had ever been mentioned by my GP, or by the kidney specialist.

I contacted my GP surgery for an appointment with a dietician and was contacted by a weightloss specialist with no knowledge of renal diets.

I have never had a weight problem. I am 5’ 10” and weigh around 10.5 st.  

I complained about this time wasting distraction and now have a telephone consultation lined up with a dietician, in late July,  

Meanwhile, I’d finally been able to get access to online shopping and so was no longer eating the food parcel items, all of which seemed designed to trigger and exacerbate CKD.

I feel APPALLED that I was given no dietary advice.

Since Sept 2017, when I was first made aware of being on CKD stage 3, I could have made a good recovery if I’d been told about potassium and phosphorus. 

Not knowing, I'd continued eating bananas, tomatoes, oatmeal, cooked broccoli, hot chocolate, all of which I have now cut out of my diet.

I’m an educated woman. If the NHS have been so negligent with me, I wonder how many other black people are similarly being denied the information they need to living healthier lives. 

Given the radical impact that dietary changes have had on my blood test results and on my well-being, how could health professional be pushing the idea that dietary interventions have no effect? 

Surely this is criminal?

How to Delay Kidney Disease Progression

Modifiable factors where interventions may delay progression of chronic kidney disease include 
- smoking cessation, 
- dietary advice, 
- hypertension (blood pressure) management, and 
- glycaemic (blood sugar) control 

see more at https://buff.ly/3fp67Ja